Mark Massey Legacy Foundation works to raise awareness, help fund groundbreaking research, and support families affected by Diffuse Midline Glioma, one of the most devastating pediatric brain cancers.
Each year, approximately 150-300 children in the United States are diagnosed with DIPG or DMG.
The average age at diagnosis is between 5 and 10 years old.The median survival for a child with DIPG is just 11 months.
Less than 4% of federal cancer research funding is allocated to all childhood cancers.
90–95% of children diagnosed with DIPG/DMG die within 2 years of diagnosis.
the why
We will spend the rest of our lives raising awareness and money for DMG cancer research so that no parent ever has to be told that their child has been sentenced to death.
There is a mass in your son’s brain. Cancer. Aggressive. It was a call that every parent dreads but at the same time thinks they will never get. A precautionary MRI had been performed earlier that morning when the radiologist called our house on that cold, gray, Sunday afternoon to deliver the devastating news. We heard everything they said and nothing at the same time. We were frozen with fear and felt like we were going to throw up. That 3 minute phone call altered the trajectory of our lives.